Tyler Saint: Living and Performing with Parkinson’s

2025 has been… honestly, a really powerful year for me. Not the easiest, but definitely one that’s made me grow in ways I didn’t expect. Along with my ever-present Husband, Ace Banner, we have been creating more content than ever for my fans’ pages — it’s been amazing to keep connecting, to share real moments, and to feel that support from people who’ve been following my journey. That sense of community has meant everything to me, especially this year.

I’ve also been traveling a lot, and one of the highlights was an absolutely life-changing two-week trip to Africa. There was something about being there — the people, the energy, the landscapes — that just reminded me how beautiful life is, even when it’s hard. It was grounding in a way I really needed.

The biggest part of my year, though, has been learning to live with Parkinson’s Disease. It’s not something you can really prepare for. Some days are good, some days are rough. The symptoms can slow me down, and that’s been tough for someone who’s always been so active and driven. But at the same time, it’s taught me to be present — to stop fighting my body and start working with it. It has taught me to appreciate my limitations equally as much as my abilities..It’s made me more open, more vulnerable, and honestly more grateful.

I’ve had to rethink what strength looks like. It’s not about pushing through everything anymore; it’s about showing up as I am, even when it’s not easy. And living my life the best way I know how.  Sharing that part of my life publicly has been scary, but I’ve realized that honesty connects people more than perfection ever will. I am still the same person, just slightly modified. Anyone observing me would probably not even be aware that I have Parkinson's.

So yeah, 2025 has been emotional, challenging, and humbling… but also beautiful. I’m still creating, still traveling, still chasing joy — just doing it with a little more awareness and a lot more heart.

Photo courtesy of Tyler Saint

How did you discover this prognosis?

It actually started pretty subtly. I began noticing small things — little tremors in my foot, stiffness in my movements, moments where I just didn’t feel quite right. At first, I brushed it off. You know, you tell yourself it’s stress, or age, or that you just need to rest more. But the signs kept showing up, and eventually I knew I needed to get it checked out.

Going through the process of testing and doctor visits was… heavy. You don’t really expect to hear a diagnosis like Parkinson’s, especially when you’re still so active and have so many things you want to do. I remember sitting there, hearing the words, and feeling like time just stopped for a minute. There’s no manual for that moment — you go from shock, to fear, to denial, and then slowly to acceptance.

I think what helped me most was leaning on the people around me — my family, my close friends, and honestly, my online community. Once I started opening up about it, I realized how many others are living with Parkinson’s or other chronic conditions, and how powerful it can be to just share. That connection has been one of the biggest sources of strength for me.

So, discovering the diagnosis was tough — it changed everything, but also gave me a new lens on life. It made me slow down, appreciate the little things, and recognize how much courage it takes to keep showing up, even when your body doesn’t always cooperate. It’s been a journey, but it’s teaching me a lot about resilience, patience, and self-compassion.

How is it affecting you? Physically? Emotionally? Sexually?

Physically, it’s something I feel in almost everything I do. Some days, my feet and legs shake, or I just move a little slower than I’d like. It can be frustrating, especially when I want to keep up the same pace I used to. Memory problems are sometimes a challenge. Recalling moments or words mid-sentence can be frustrating. But I’ve learned to adapt — to listen to my body rather than fight it. Some days I push through; other days, I let myself rest. It’s all about balance.

Emotionally, it’s been a real test of strength. There are moments when I feel incredibly grateful for the life I have, and others when the reality of Parkinson’s just hits hard. There is ever-present self-doubt— there’s grief, frustration, even fear sometimes. But there’s also growth. I’ve learned to give myself grace, to open up more, and not to pretend that everything’s perfect. That honesty has made me stronger than I ever was before. This disease does not define who I am.

Sexually, it’s definitely brought challenges too. The tremors can affect confidence and can be a hindrance when trying to concentrate on the moment.. The medications have side effects that can make things a little "less hard" and a bit more complicated. It’s one of those parts of the journey that people don’t talk about much, but it’s real. It can be distracting and frustrating at times, but I try to approach it with patience and understanding — both for myself and for my partner. It’s about learning to adjust, to communicate, and not to let those moments define my sense of self or my sexual wants and needs.

Does all of this make it harder to perform?

Yes and no.  There are days when it feels like my body and my mind are on two different pages. The tremors, the stiffness, the fatigue — they can all make it tough to stay in control or even stay focused. Sometimes the medication helps, sometimes it slows me down. It’s unpredictable, and that can be frustrating when you’re trying to create or perform at a certain level.

I’ve had to learn patience — to stop forcing things and just move at the pace my body allows. Some days I can create for hours; other days, I can’t. And that’s okay. It is all about what my body can withstand on any given day. Most days, everything works perfectly and I have an abundance of energy and confidence, which makes content creation fun and effortless - obviously, these are my favorite days!. When I do get something done, it means more. It’s not just another post or video — it’s proof that I still have what it takes to put out quality content for our fans.

How are you going to combat this? 

I think for me, it’s about fighting smart — not just fighting hard. Parkinson’s isn’t something you can just push through or ignore. It demands patience, discipline, and a mindset shift. So I’m focusing on what I can control. Staying active, keeping my body moving, eating right, and staying on top of my medication — those are my daily battles.

And creatively, I’m not giving up. If anything, Parkinson’s has made me more determined to keep expressing myself. I might have to do things differently, but I’m still doing them. That’s how I combat it — by refusing to stop living, creating great and sexy content, and finding meaning in every day.

Has your husband and fellow performer Ace Banner helped you through this? 

Absolutely. Ace has been incredible. He’s seen every side of this — the good days, the hard days, the moments when I break down, and the ones when I feel strong again. Having someone who really understands both the personal and professional sides of what we do makes a huge difference.

He’s patient when I need space, and he’s right there when I need support. Sometimes it’s just a small thing — helping me with something physical, or reminding me to rest — but it means everything. And emotionally, he’s been my anchor. He doesn’t try to “fix” it; he just shows up, and that kind of steady love keeps me grounded.

Working together as performers adds another layer. He knows what it takes to create, to be on, to give so much of yourself — so when my energy’s low or my body isn’t cooperating, he gets it. We’ve learned how to adjust, to communicate better, to find balance between caring for each other and still doing what we love.

I don’t think I could’ve come this far without him. He’s been my strength when mine runs out — and he reminds me every day that I’m still me, no matter what this disease tries to take from me.

Photo courtesy of Tyler Saint

Why have you chosen to go public with your prognosis?

At first, I wasn’t sure I wanted to. It’s such a personal thing, and part of me just wanted to handle it quietly. But the truth is, hiding it started to feel heavier than sharing it. Parkinson’s is a part of my life now, and pretending it isn’t there didn’t feel honest — not with myself, and not with the people who’ve supported me all this time, including my loyal fans.

I’ve built my work around connection and authenticity, and I realized this was another chapter of that. Going public was my way of taking back a little control — of saying, “This is me, this is real, and I’m still here.”

I also wanted to bring a little awareness to what living with Parkinson’s actually looks like. It’s not just a diagnosis — it’s a daily reality that so many people deal with quietly. If my speaking up helps even one person feel less alone, or helps others understand what this fight really is, then it’s worth it.

More than anything, I just wanted to be honest. Life isn’t always polished or perfect — it’s complicated, unpredictable, and sometimes really hard. But it’s still beautiful. And sharing that truth, even when it’s uncomfortable, feels like the right thing to do. As I stated in a previous question, I'm still me - this disease does not change who I am and who I strive to be, it's just a bump in the road of life.

Why do you want to keep performing? What does it mean to you?

I love what I do. That is why I've been doing it for so long.  I love creating content, performing, and giving my fans something real and exciting to connect with. That hasn’t changed just because life got harder. It might take more planning now, or I might have to work around my body some days, but I still want to keep producing awesome content — to keep showing up and doing what I love..

It's about continuing to share, to create, and to stay connected with the people who’ve been with me through everything. That’s what keeps me going.I get messages daily about how my content and being so real helped them to realize their own sexuality and made it easier to be their authentic selves. Why would I stop showing people who may be struggling that it is okay to just be who you are?

What do you want your fans to know? Can they help you?

I want them to know that I’m still here, still creating, and still giving everything I’ve got — even if things have changed a little for me. Parkinson’s hasn’t taken away my passion or my drive to put out content that inspires, entertains, or just makes people feel something. I want them to see that life keeps moving, and that even when it’s messy or hard, it’s still worth showing up.

My fans mean the world to me. Their support, their messages, the way they connect with what I create — it keeps me going every day. Knowing that what I put out there can brighten someone’s day or make them feel less alone gives me purpose beyond just performing. It’s not just about the content; it’s about the connection, the shared experience.

The best way they can help is just by being there — by engaging, supporting, and sharing in the journey with me. Every message, every comment, every bit of encouragement makes a bigger difference than they might realize. It reminds me why I do what I do, and it keeps me motivated to keep creating, no matter what challenges come up.

Beyond that, understanding and patience mean a lot. Some days might be harder than others, and their support in those moments — just knowing they’re along for the ride — makes all the difference. It’s about keeping the connection alive, and that connection has always been what gives my work meaning.

Being open about what I’m going through with Parkinson’s hasn’t been easy, but it’s also been incredibly meaningful. I want them to know that even through challenges, we can keep creating, keep loving, and keep finding joy in what we do. That’s what keeps me moving forward — and that’s what I hope they take from it too.

Will Tyler Saint continue on?

Absolutely. Tyler Saint isn’t going anywhere. Parkinson’s is a condition I have, but it doesn’t change who I am or my love for performing and creating content. I’m still going to keep creating sexy content, posting salacious pictures and videos, and keep showing up for my fans.

Every photo, every video, every moment in front of the camera — it all still matters to me. It might take a little more planning or effort now, but that’s part of the journey. Tyler Saint is still here, still creating, and will be for as long as my fans want to continue seeing me!

Photo courtesy of Tyler Saint

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